Publications

NEW FACT SHEETS for 2017!
Once again, the International Alliance for Pediatric Stroke  partnered with the American Heart Association to produce two new fact sheets. Please share and distribute these widely to educate and raise awareness that strokes can happen in babies, children and teens!
 
 
 
  
This infographic was co-produced by the International Alliance for Pediatric Stroke and the American Heart Association/American Stroke Association to outline the risk factors and important signs and symptoms of pediatric stroke. It is also available in Spanish and Portuguese.
 
The following three pediatric stroke educational materials were funded through a quality improvement grant from the North Carolina Stroke Care Collaborative. The International Alliance for Pediatric Stroke collaborated with the Project for Expansion of Education in Pediatric Stroke (PEEPS) Committee to create these useful resources. Thank you to the pediatric stroke families who provided pictures and quotes!
In addition to the three resources above, the Carolina Acute Stroke Training (CAST) now has a Pediatric Stroke Module (Module 9). The Carolina Acute Stroke Training (CAST) program was developed by the UNC Stroke Team under the leadership of Susan Wilson RN, MSN, C-ANP. Learners for CAST include registered nurses, first responders, pharmacists, allied health professionals, and a wide variety of persons with different backgrounds, education and experience.
 
Each module ends with a “Completion Certificate” which indicates learning hours for a wide range of learners. The learning hours include time for reviewing the module, discussing it with colleagues, and reviewing additional resources. There is no cost to register to complete the modules. However, for anyone needing accredited continuing education, there is a nominal $29 registration fee and includes completing all the modules.
 
International Alliance for Pediatric Stroke Newsletters
Issue 1 April 2016, Special Edition May 2016, Issue 3 June 2016, Issue 4 October 2016, Issue 5 April 2017, Issue 6 September 2017
 
This guide was published through Canadian Stroke Best Practices/Heart and Stroke Foundation of Canada. It is designed to provide basic information about stroke and stroke care to families of children who have had a stroke. It is an educational resource based on the Canadian Stroke Best Practice Recommendations for Stroke Care (2010), current research and expert opinion. Research about stroke in children and babies is still developing; much of the information in this guide comes from stroke experts and from families who have experienced childhood stroke and are sharing their stories.

The PDF is accessible online, however, hard copies are available at no charge for individuals, physicians and hospitals. The information is applicable to pediatric stroke anywhere in the world. Please contact Dr. Patrice Lindsay at plindsay@hsf.ca or 647-528-4361 for more information or to obtain copies.

A resource creating a community of support for pediatric neurology disorders. The Pediatric Stroke listing includes information from IAPS Board Member, Dr. Adam Kirton. In addition, there are Family Stories and Resources.
 
The Canadian Heart & Stroke 2017 Stroke Report looks at the stroke recovery journey across the ages, highlighting common challenges and issues that occur at specific life stages: babies and children, younger adults and older adults. It examines the essential role of the family caregiver, highlights the importance of placing the patient and family at the center of care, and identifies areas where system improvements could support the changing profile and needs of people who experience stroke.
 
This publication is a joint production between the National Stroke Foundation, Royal Children’s Hospital Melbourne and Strokidz. While it was written to provide information locally to the families in Australia, it does contain universal information that may be helpful to pediatric stroke communities throughout the world. Families collaborated with physicians in providing personal stories, artwork, a photographer, and feedback on the content. For more information about obtaining printed copies or the Strokekidz organization, please contact Andrew Price at admin@strokidz.com

This book, published through HemiHelp in the U.K., is a detailed overview of hemiplegia covering a wide range of aspects from its causes to information on how to support a child affected by hemiplegia. Practically oriented, the Hemiplegia Handbook aims to be a useful guide for both parents and professionals. It costs £5.00 to ship outside of the UK in Europe and £10.00 to ship to countries outside of Europe. For international purchases please contact the office before making your order 0845 120 3713 or email kate@hemihelp.org.uk

FACTS: Knowing No Bounds: Stroke in Infants, Children, and Youth
This pediatric stroke fact sheet was published by the American Heart Association/American Stroke Association in 2009. It was vetted by the AHA/ASA’s scientific advisory board and is the most up-to-date, comprehensive, accurate information available for pediatric stroke.

The most current information for cardiovascular diseases in youth published by the American Heart Association/American Stroke Association.

Let's Talk About Children and Stroke 
A fact sheet from the American Heart Association/American Stroke Association which includes information on hemorrhagic and ischemic strokes in children.

A fact sheet from The Stroke Association, the UK's leading stroke charity.
 
A Guide for Occupational Therapy and Health Care Clinicians, Researchers, and Educators.
 
Under the leadership of Dr. Patti Lindsay, (IAPS board member) the WSO SSO Committee has collected a list of patient and public educational materials that has been submitted by various partner and member organizations. Each list is searchable by different category for your convenience.
 
The revised Stroke Rehabilitation recommendations are published in the International Journal of Stroke and are part of the fifth edition of the Heart and Stroke Foundation Canadian Stroke Best Practice Recommendations. The 2015 update of the Canadian Stroke Best Practice Recommendations (CSBPR) Stroke Rehabilitation recommendations continue to emphasize specialized stroke care provided by an interdisciplinary team, and the inclusion of the patient and caregiver(s) as an important part of the rehabilitation team. This year, a section specific to pediatric stroke has been included. Scroll to page 478 for the start of the pediatric section.
 
Dr. Rebecca Ichord of Children's Hospital of Philadelphia, explains the signs and symptoms of pediatric stroke and demonstrates an exam.
 
Roberto D'Angelo and Francesca Fedeli talk about their son Mario's perinatal stroke and mirror neuron rehabilitation during a TEDGlobal talk in 2013.
 
Lotta e sorridi (Smile and Keep up the Fight)
A story about love and science by Francesca Fedeli.
The moving story of two parents faced with what parents fear the most -- their child's illness -- and turning it into an amazing opportunity. The book is written in Italian and Ms. Fedeli is looking for a publisher to translate it to English. The English excerpt can be found here. The book is available on Amazon.
 
This book tells the story of how a mother drew inspiration from her childhood heroes and applied seemingly unrelated life experiences, like working as a flight attendant and learning to play the piano, to helping her daughter overcome the effects of a childhood stroke. And, within the struggles, how she ultimately found a sense of healing, realizing that even the most difficult situations can eventually bring something positive. To read an excerpt, click here. Available internationally through Amazon.ca. 
The “Mimi” Books are based on a mother’s own experience helping her daughter. They feature a young girl who is just like everyone else except that as a baby, she suffered a stroke. For children facing the challenges of physical rehabilitation, the stories show children how someone much like themselves deals with the kinds of challenges they are likely to face in the early years of their lives. Read more about the book here.
“Mimi Learns to Walk” is the first book of the series.
Available internationally through Amazon.ca in English. Also available in French through Amazon.ca.

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