Child Neurology Foundation, Family Support and Empowerment Program, FSEP
Direct Connection with a Peer Support Specialist, worldwide (online/phone)
 
If you’re a PARENT, receiving a diagnosis for your child can be life-changing. Having a safe place to explore feelings of “this is not the way it’s supposed to be” is what the CNF Family Support and Empowerment Program (FSEP) is all about. Sharing the emotional process that often comes with a new diagnosis or living with a neurologic condition, with someone who has also experienced these feelings, can be helpful to many families.
 
FSEP offers families a direct connection with an experienced, compassionate Peer Support Specialist to help navigate the journey of disease diagnosis, treatment, and management for a child living with a neurologic condition. FSEP’s Peer Support Specialists are trained to listen to you along this emotional journey without judgment. Each Peer Support Specialist receives comprehensive training about the needs of the child neurology community and ongoing mentorship as they start connecting with families. Along with offering relational support, Peer Support Specialists seek to empower families by sharing sound information and helpful resources.