Board of Directors 


 

Mary Kay Ballasiotes
President

Mary Kay Ballasiotes is the co-founder of IAPS. She has a daughter who suffered a prenatal stroke. Ms. Ballasiotes was the founding president of Childhood Stroke & Hemiplegia Connections of Illinois, a Chicago based local non-profit organization for families of childhood stroke survivors. As a volunteer advocate with the American Heart/American Stroke Association and working with medical professionals, Mary Kay has given presentations at various local hospitals, medical conferences and schools. In addition, Ms. Ballasiotes is a patient reviewer and mentor for Patient-Centered Outcomes Research Institute. Mary Kay also serves on the University of North Carolina Hospital's Stroke Advisory Board in Chapel Hill, NC.

 

 

Dr. Adam Kirton
Vice-President

Dr. Adam Kirton is a pediatric neurologist and clinician scientist. He founded and directs the Calgary Pediatric Stroke Program, Alberta Perinatal Stroke Project and the ACH Pediatric Non-Invasive Brain Stimulation Laboratory.

 

 

Shelley Dean, OTD, OTR/L

Dr. Shelley Dean is the owner and founder of Crossway Pediatric Therapy and Crossway Academy. Dr. Dean is certified in the Sensory Integration and Praxis Test, Therapeutic Listening and Handwriting Without Tears: The Print Tool. She also has extensive training in Applied Behavior Analysis, Sensory Oral Sequential Approach to Feeding, Autism Inside and Out, American Sign Language and Picture Exchange Communication System· In addition to the long-term passion for treatment of autism, Dr. Dean has researched and trained in contemporary neuromotor rehabilitation interventions to treat children with neuromotor involvements such as hemiparesis secondary to stroke. These contemporary approaches include: modalities, robotics, myofascial release, kinesiotaping, Saebo, Constraint Induced Movement Therapy (CIMT) and Musgatova Neuro Reflexive Integration. Dr. Dean's Occupational Therapy Doctorate Capstone research examined a family centered and multi-component approach for the treatment of children with hemiparesis secondary to stroke. 

 


 
Francesca Fedeli
 
Francesca Fedeli is President and co-founder of Fightthestroke.org. Francesca is the mother to Mario, who survived a perinatal arterial ischemic stroke. She and her husband Roberto D’Angelo founded Fightthestroke, a social enterprise to gather and share the experiences of families who have been affected by all types of strokes at young age. Together, as a family, they’re promoting the awareness of Mario’s story at events like TED Global (Edinburgh, Scotland, June 2013). Over the years, Francesca has established herself as an international thought leader and influencer on the topic of pediatric stroke, open medicine, citizen science and crowdsourced solutions in healthcare.
Most recently Francesca further solidified her position as global thought leader by publishing a book translated to Fight and Smile: A Story of Love and Science.
Francesca was also the recipient of the Eisenhower Fellowship in 2014. In June 2015 Francesca was selected as the first Ashoka Fellow in Italy, entering a network of leading social entrepreneurs.
 
 

Patrice Lindsay, RN, PhD

Dr. Patrice Lindsay completed her PhD in Health Services Research/Evaluation and Outcomes at the University of Toronto. Dr. Lindsay is currently the Director of Best Practices and Performance, Stroke, at the Heart and Stroke Foundation in Canada. As director, she leads the development of stroke best practice guidelines and the knowledge translation strategy, including dissemination and implementation tools, and resources for stroke patients and families at all ages and stages of the stroke journey. In addition, she is responsible for ongoing quality monitoring and stroke care performance measurement across Canada. She is a member of the World Stroke Organization Board of Directors and is a recipient of the Queen Elizabeth II Diamond Jubilee medal for her commitment and efforts to improve stroke and outcomes in Canada and internationally.

 

Camie Rodan
Social Media Manager
 
Camie Rodan has a son who is a perinatal stroke survivor. Ms. Rodan is a marketing and digital media professional with experience in startup, non-profit, and corporate environments. She helps businesses relay their brand and message to target audiences through a variety of marketing platforms. Most recently, she worked as the branding director at Sisarina, a branding company specializing in design, development, and marketing, and previously as the community & external affairs manager for the Saylor Foundation managing marketing, PR, and outreach efforts. Ms. Rodan holds an MBA from George Washington University and a Bachelors of Arts from Vanderbilt University.
 
 

 Amy Share

Amy Share is an adult that suffered a perinatal stroke, causing right hemiplegia. She received a Master of Public Administration with a concentration in Nonprofit Administration from the University of Georgia. Amy is currently a grant writer at Best Buddies International, a nonprofit that creates one-to-one friendships, integrated employment and leadership opportunities for people with intellectual and developmental disabilities based in Miami, FL. 
 
 
  
Larry Foster
 
Larry Foster is the father of Larson, who has survived 4 strokes. In 2014 at age 6, Larson suffered what was thought to be his first stroke. It was determined at that time that unbeknownst to his parents, he had had a previous stroke a few months prior. Larson went on to suffer two more strokes during 2014. Larry and his wife Deanne have been focused on raising awareness of pediatric stroke to parents, first responders, and medical professionals. In addition to helping raise research funding Larry, Deanne and Larson are all volunteer advocates with the American Heart/American Stroke Association.

 

Medical Advisory Board
 
 

Dr. Catherine Amlie-Lefond

Dr. Catherine Amlie-Lefond is a pediatric neurologist and clinical researcher. She founded and directs the Pediatric Vascular Neurology Program at University of Washington/Seattle Children’s Hospital.



 Dr. Stephen Ashwal
 
Dr. Stephen Ashwal is a founding charter member of the International Pediatric Stroke Study and past president of the Child Neurology Society. Dr. Ashwal is also the co-editor of the standard textbook of Pediatric Neurology (‘Pediatric Neurology: Principles and Practice’). In addition, Dr. Ashwal is the Chief of the Division of Child Neurology at Loma Linda University School of Medicine and a Basic Science and Clinical Researcher in Pediatric Stroke. Dr. Ashwal's research includes the use of stem cells for the treatment of neonatal stroke and hypoxic ischemic brain injury and the use of advanced magnetic resonance imaging methods to monitor stem cell replication and migration and to monitor recovery of brain injury both structurally and functionally.

  

Timothy Bernard, MD, MSCS
 
Dr. Timothy Bernard is a pediatric neurologist and clinician scientist at the University of Colorado. Ten years ago he founded the first stroke clinic in Colorado, and currently serves as the Director of the Pediatric Stroke Program at The Children’s Hospital Colorado. Dr. Bernard seeks to understand the mechanisms underlying childhood stroke through his NIH and AHA funded research exploring endothelial dysfunction and coagulation abnormalities in children with stroke. Dr. Bernard also serves in several educational capacities, including co-director of the AHA/Bugher Pediatric Stroke Fellowship, training the next generation of scientists dedicated to understanding and treating children with stroke.

   
  
 
Casey Olm-Shipman, MD, MS
 
Dr. Casey Olm-Shipman is a neurocritical care and vascular neurologist. She is an assistant professor in the departments of Neurology and Neurosurgery at the University of North Carolina at Chapel Hill School of Medicine, where she is a faculty member in the divisions of Neurocritical Care, Child Neurology, and Stroke. She completed her residency training in Neurology and Child Neurology followed by fellowship training in Acute Stroke and Neurocritical Care at Harvard University, Massachusetts General Hospital and Brigham and Women’s Hospital. She is currently working to establish a comprehensive program in Pediatric Stroke at University of North Carolina, and is interested in further exploring systems of healthcare delivery in pediatric stroke and other pediatric neurovascular conditions.
   


Dr. Mark Wainwright
 
Dr. Mark Wainwright is a Professor of Pediatrics and Molecular Pharmacology and Biological Chemistry at Northwestern University Feinberg School of Medicine, Chicago.  He is director of the Ruth D. & Ken M. Davee Pediatric Neurocritical Care Program at Ann & Robert H. Lurie Children's Hospital of Chicago. 
 

Honorary Board Member



Dr. Gabrielle deVeber
Retired Board Member 
 
Dr. Gabrielle deVeber is one of the original co-founders of the International Alliance for Pediatric Stroke. Her vision, expertise, insight, and passion will be missed. However, we hope she will still be available should the need arise for consultation on our future endeavors. We sincerely thank you for your support over the years Dr. deVeber!
 
Dr. Gabrielle deVeber's bio includes: founder of the International Pediatric Stroke Study, Director of the Children's Stroke Program, Division of Neurology at the Hospital for Sick Children in Canada. Dr. deVeber has been providing clinical care for over 600 infants and children with ischemic stroke since 1992.
 
  

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